When the hospital doctors tried stopping the IV Dormicum (aka Midazolam), she returned to Status Epilepticus with a vengeance within a couple of hours (one minute between seizures).
So she was rehooked-up immediately to the stuff.
Then today the doctor lowered the dose from 3% to 1% and before our very eyes she began seizing again. So he promptly re-raised it and the seizures disappeared. Not much of a solution.
I inquired about the longer term plan.
He told me their plan was to get her off Dormicum and replace it with an oral benzodiazepine, Frisium (aka Clobazam); raise her Keppra (aka Levetiracetam) dose; stop the Phenytoin; and continue with Vimpat (aka Lacosamide) aiming to raise it from 100 mg twice a day to 200 mg twice a day.
Can't imagine there will be much of C. left on that potent a cocktail.
At the same time he said the team is encouraging continuation of Cannabis CBD and THC.
That's all very nice (I'm referring to the cannabis green light) but there's no point in giving THC if she has already been zapped with the other stuff. How will we know whether it's worked?
And we are currently allotted such a small quantity by the government's medical cannabis agency. We'd need a lot more to administer it freely.
|A quick bedside sketch|
Well, if any of you would not find the above stressful, please let me know. Because the senior neurologist who dealt with yesterday's setback told the hubby: "Your wife seems very stressed. She reminds me of my mother. I see I can't share all information with her."
Who knew senior neurologists go in for crude mansplaining?
PS: C.'s own neurologist came by today after being away all week. She offered the option of an induced coma which would entail intubation accompanied by the risk of C. never being able to breath independently again. I said thanks but no thanks.
She then warned that even C's current treatment protocol could at some point necessitate intubation. Would we agree to that? Something to ponder.
But, of course, not get stressed over. Perish the thought.