Sunday, September 23, 2018

I wanna hold your hand

I haven't written about C.'s occupational therapy sessions which have been ongoing for two months. 

A few weeks ago we had one fiasco with C. in the throes of a string of seizures when the therapist arrived. (I had called to notify her but she was already on her way). 

Since then, though, we've had a few productive ones. 

Here is C. (above) getting her ligaments gently stretched at the session's start to maximize her range of movement:

And here below she is working on gripping an object while therapist, N., shakes her hand. 

She is improving at closing her hand to grasp an object and then, on demand, opening her hand to release it.

Modest goals, but enthusiastic responses from all three of us - the therapist, C.'s caregiver, E. and me. You've got to admit, we're a realistic bunch.

We had about two weeks of relative relief from seizures (i.e. only about three a day) which I attributed to the rise in the nighttime Vimpat dose. 

But here we are, after raising the morning dose too and the seizures are back with a vengeance. 

We still haven't managed to check the Keppra blood levels so maybe therein lies a solution. The HMO nurse tells us that test will only be available in about a week. 

No hydro photos because the therapy pool is also closed for a few weeks. 

Excitedly awaiting delivery of the new wheelchair on October 8. 

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