The Sound of the Silent: And a bit about C

Wednesday, June 26, 2013

And a bit about C

My daughter C. has been on the full Valproic Acid dose for a week now i.e. 400 mg. twice/day. But she still seizes about 3 times a day.

I'm still hoping that it's too soon for the full effect of the raised dosage.

Delusional? I suppose.

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About my blog

C. is the youngest of our children. She suffers from severe epilepsy, blindness, microcephaly and profound cognitive and physical impairment.

We have faced hurdles and gained insights through our encounters with the medical, educational and governmental establishments.

Nobody was there to help or guide us.

I would love to spare parents in the same predicament some of the painful mistakes and wasted efforts we have made.

I am also eager to promote greater acceptance, inclusion and appreciation of our children. The new, heightened awareness of people with disabilities tends to gloss over our children - the ones with profound disabilities. They are a forgotten minority within this minority. Still marginalized and even shunned by many "enlightened" societies, they are a long way off from achieving equal rights.

Silenced by their disabilities, this blog is their voice.

Feedback: the.sound.of.the.silent@gmail.com