Trial and error - with the emphasis on error

The gauntness and pressure sores are still plaguing C. but - ssh, don't divulge this to a soul - she's seizing less than she has in years and is only getting cannabis. The Hubby and I don't even dare to utter the above so we "nudge, nudge, wink, wink" to report our observations to one another.

The health maintenance org people finally sent us a dietitian to assess C. and her diet. She was stumped, along with everybody else. Where is all that nutritious, high calorie and protein food I so lovingly cook for her going? She said she'd consult with more senior colleagues and get back to us but so far, nothing.

This morning the visiting nurse took more blood from C. for a laundry list of tests ordered including one that C.'s pediatrician believes may shed some light on the source of her liver damage.

And this afternoon a second health fund physiotherapist came to finish the assessment begun by her colleague three months ago so that a new insert/wheelchair and bath seat can be ordered, courtesy of the health ministry.