In any case, blogging has been relegated the back burner. But just briefly, a few updates:
Elizabeth Aquino pointed out (here) that the restraint used at our dental clinic could be a horrible experience for somebody struggling and writhing to break free. Probably worse than just being held down by a family member as Elizabeth does her daughter, Sophie, at their dentist. I suppose C.'s compliance made it perfect for her and patients like her, and colored my assessment of it. For them, it's by far preferable to either general anesthetic or no dental care at all.
Our run of nearly-seizure-free days ended yesterday. It's been 3-4 per day since. There doesn't seem to be any rhyme or reason to these swings.
Nevertheless, C. excelled again at hydrotherapy where I snapped her floating and kicking her legs with flippers, yesterday. (Two photos here to show how she moves her legs.)
|Legs together, legs apart: |
C. in her school's hydrotherapy pool
But I was apoplectic to note that she was the one and only child in the pool - at 10:30am! To remind you: this year, due to financial constraints, the school has reduced the number of hydro session per week per child to ONE! (C. still gets 3 per week, though and here's why).
I came across a beautiful article and video clip: "Silence Wrapped in Eloquent Cocoons: Judith Scott’s Enigmatic Sculptures at the Brooklyn Museum". The late Ms Scott's show, entitled Bound and Unbound, is praised objectively. But her biography is also told sensitively and adds a moving dimension to her art that cannot be ignored when viewing it.
|Judith Scott (American, 1943‒2005). |
Untitled, 2004. Fiber and found objects
Ms. Scott, who died in 2005 at 61, had an interesting history of her own. A twin, she was born with Down syndrome and consigned to a state institution in Ohio at the age of 7. Because she couldn’t communicate verbally, she was classified as “profoundly retarded.” Only in her 30s was it discovered that she couldn’t learn language because she was deaf. In the 1980s, her twin sister, Joyce Scott, became her legal guardian, brought her to live near her in the San Francisco area and enrolled her in an art workshop called Creative Growth Art Center in Oakland.
Who knows what talent lies buried in the institutionalized citizens of my country who were not even remembered at all in our local news outlets on December 3?