In this country, our disabled children have a truncated vacation compared to the non-disabled (2 weeks).
Nevertheless,
showering C. at home during that period has been debilitating. Normally she has
hydrotherapy at school 3x/week which means showers-at-school on those days.
I was excited to learn that C.'s class will have a new teacher. The one we have endured for the last 2 years was way beyond a disappointment. She was often out of the classroom, was aloof from the children, dressed in party clothes for work and seemed intent on keeping herself “dolled up” right through to the last minute of her shift.
I was excited to learn that C.'s class will have a new teacher. The one we have endured for the last 2 years was way beyond a disappointment. She was often out of the classroom, was aloof from the children, dressed in party clothes for work and seemed intent on keeping herself “dolled up” right through to the last minute of her shift.
She did have one forte – I’m not
entirely clear on how this benefited her students, though. She was an avid
SMSer. Parents received warm texted greetings before every single festival.
I brought C. to school later and later
every day as the last year progressed. It had become nothing but a babysitting
service.
I am the only parent in the school who brings her child (we live a 3 minute's walk away; everybody else arrives by school bus. Some children are on the road for three hours/day.)
I am the only parent in the school who brings her child (we live a 3 minute's walk away; everybody else arrives by school bus. Some children are on the road for three hours/day.)
Nevertheless, the teacher never found the time or
inclination to discuss my daughter with me when we met. Nor did she call me
even once during the last 2 years.
So it was understandably uplifting to receive a phone call from the new teacher. He is young and eager and invited me to describe C. He is also utterly inexperienced with the profoundly disabled. I took the liberty of discussing with him the distinction between C and the other children in the class - who are severe, but not profound.
By the way, are any of you as frustrated as I am over the rampant professional ignorance of the unique needs of the profoundly disabled as distinct from the "merely" severely-affected children?
For instance, I pointed out to the new teacher that group activities are an utter waste of time for C. She needs intensive one-on-one work. And repetition to the umpteenth degree. Needless to say, the budgetary constraints here don't permit that. But it's the only way to reach my child, and, I presume, other profoundly disabled children.
So it was understandably uplifting to receive a phone call from the new teacher. He is young and eager and invited me to describe C. He is also utterly inexperienced with the profoundly disabled. I took the liberty of discussing with him the distinction between C and the other children in the class - who are severe, but not profound.
By the way, are any of you as frustrated as I am over the rampant professional ignorance of the unique needs of the profoundly disabled as distinct from the "merely" severely-affected children?
For instance, I pointed out to the new teacher that group activities are an utter waste of time for C. She needs intensive one-on-one work. And repetition to the umpteenth degree. Needless to say, the budgetary constraints here don't permit that. But it's the only way to reach my child, and, I presume, other profoundly disabled children.
The new teacher informed me of a
reshuffling of the students. Since three of C’s current classmates are leaving
(don’t know to where), three others will be transferred in from her old class.
They are all as profoundly affected as C. I’m not really sure whether this is a
plus or minus for us but it certainly increases the new teacher’s hurdles. I
warned him that he’s in for a “challenging” year. How’s that for a gentle
euphemism? And wished him lots of strength.
Today was the first day of school for
everybody in this country. In past years, children with disabilities began
school earlier than the rest but opening day for the non-disabled has been pushed
up from September 1.
The new teacher was as warm and involved
in person as he sounded on the phone. The occupational therapist who will be
working with C. was also in the room when I arrived. I was impressed with her inquisitiveness
about C and her eagerness to combine forces with me. It was like landing on another planet – a
disabled-friendly one.
Oh, and another happy surprise: C.
received hydrotherapy! What a pleasure to see that look of bliss that engulfs
her the moment she hits the water.
Lest you and your child were also
blessed with an easy return to school, here is a NYTimes article that should
jolt you back to harsh reality.
Assault: Children With Disabilities Are More Likely to Be Victims of Violence, Analysis Shows
July 16, 2012 | By DONALD G. McNEIL Jr.
Children with
disabilities are almost four times more likely to be victims of violence than
other children, according to a new report commissioned by the World Health
Organization.
The report, published in The Lancet on Thursday, found that disabled children were
3.6 times more likely to be physically assaulted and 2.9 times more likely to
be sexually assaulted. The most common victims of sexual assault were those with
mental illness or retardation, and institutionalized children were attacked
more often than those living at home.
Last week’s
report was a meta-analysis of 17 other studies that collectively gathered
evidence on 18,374 children, all of them living in wealthy countries, from the
United States to Europe to Israel. About 3 percent of children in rich
countries and up to 6 percent in poor ones have disabilities. “Physical violence” included threats and spanking that
left marks on the skin. A study
published about 10 years ago estimated that 53,000 children under age 18 are
murdered each year.
Dr. Etienne
Krug, the director of the W.H.O. department of violence and injury prevention,
said that strategies that have proven to protect other children should be
studied for the disabled. Among these are training for violence-prone parents
and home visits by nurses to children at risk.
An accompanying
editorial also touched on mentally ill adults, saying public fear
of them should be redirected to “increased awareness of, and compassion
towards, these individuals as victims of violence.”
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