The Sound of the Silent: Seeing a dietitian

Wednesday, September 7, 2016

Seeing a dietitian

I finally made an appointment with our health maintenance organization's dietitian today in the pursuit of advice on how to cure C. of her newest condition. (Yes, free so why not). After finally reading the GP's referral note, which I'd stashed away two weeks ago I learned it has an impressive medical title: Hypoalbuminemia.

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About my blog

C. is the youngest of our children. She suffers from severe epilepsy, blindness, microcephaly and profound cognitive and physical impairment.

We have faced hurdles and gained insights through our encounters with the medical, educational and governmental establishments.

Nobody was there to help or guide us.

I would love to spare parents in the same predicament some of the painful mistakes and wasted efforts we have made.

I am also eager to promote greater acceptance, inclusion and appreciation of our children. The new, heightened awareness of people with disabilities tends to gloss over our children - the ones with profound disabilities. They are a forgotten minority within this minority. Still marginalized and even shunned by many "enlightened" societies, they are a long way off from achieving equal rights.

Silenced by their disabilities, this blog is their voice.

Feedback: the.sound.of.the.silent@gmail.com