Wednesday, September 18, 2013

Two small doses of inspiration

I know too many adults with severe physical disabilities who, besides the hardships that directly entails, suffer the curse of loneliness. Very often they are intelligent, gifted, interesting and kind. But their circumstances condemn them to singlehood. (Two of them happen to be among the last polio victims in the developed world.)

Some non-disabled are investing time and effort to change that harsh reality. One of them explains the work of their organization below:
Most of our clients have physical disabilities ranging from mild CP to blindness to people in wheelchairs. Some of our clients were born with a disability while others were injured in car accidents or terror attacks. They are functioning adults, mostly employed, many with university degrees. We hear all the time that with all of their challenges, loneliness is the greatest challenge they face.” [The organization] sponsors monthly events that include a workshop or lecture related to relationship-building, communication or other marriage-related topics as well as time for mingling.
And here is one of the organization's success stories. Be sure to click on Turn on Captions so that the English-language subtitles can appear on your screen:



Remember, again: Click on Turn on Captions to view the English subtitles.

There's a little more light at the end of the tunnel, this time from an especially unlikely source. Several American beauty pageant contestants have been women with disabilities ranging from autism to deafness and even missing limbs. Despite my pageant prejudices - I just don't get their appeal - there's no denying that these women and the pageant organizers are promoting acceptance and inclusion.

The woman in the picture below is this year's Miss Iowa, Nicole Kelly, seen on stage during the evening gown portion of the preliminary round of the Miss America pageant in Atlantic City, New Jersey, on September 10, 2013 (source: Trade Arabia):

3 comments:

tanstaafl02 said...

My child is paralyzed with CP and severe mental challenges also. She has never spoken,walked or been out of diapers. Erin had her first pertussis shot and the next day began having constant seizures. That week, it was announced that no child with seizure have the shots. We also saw a child die from the pertusis shot. You are very right not to have risked further brain damage for her. Thanks for writing about your child!

tanstaafl02 said...

My daughter is also frozen with CP. She cannot talk, walk or been out of diapers. While still very new, she had her first pertussis shot. The next day began years of constant seizures, with more brain damage resulting. The day after the shot, med advisories were issued saying no pertussis when seizure disorder present. I wish we had known to put our foot down!We have been very lucky and blessed with resources for the disabled here in Frederick, MD.
Several years ago, I hired a home health aide to help me to lift her.
She now lives with us. A treasure.
Erin attends a wonderful day program for people who have aged out of public school. Most of the staff retire from Change, so there is little turnover and they cannot do enuf for their young people! It saddens me to see situations like in NY. Why weren't the administrators prosecuted?

Mother of the Silent said...

I am sorry to hear about your daughter, Erin's, vaccine injuries.

Have you investigated your eligibility under the National Vaccine Injury Compensation Program? It compensates vaccine-related injury or death claims for covered vaccines administered on or after October, 1988.

Here's their link: http://www.hrsa.gov/vaccinecompensation/index.html

(We are not eligible because we had already lived outside the U.S. for more than six months at the time of C.'s vaccine.).

How old is Erin now?

I am growing more concerned about C.'s future and our ability to care for her with every day. At 18, she only has three years of school left and then - I dare not imagine what will happen then.

Please share more of your experiences with us all.