Giving C. her meds |
A team of researchers
from three major Australian universities has been devoting lots of time and
energy to parents of children with disabilities - 30,000 of them, to be
precise.
Last month they released results of their survey [here]. They found that their subjects were under twice as much stress as parents of "typically developing children". (Now, there's a PC term for "normal kids" I hadn't encountered before.)
Last month they released results of their survey [here]. They found that their subjects were under twice as much stress as parents of "typically developing children". (Now, there's a PC term for "normal kids" I hadn't encountered before.)
They also learned that
70% of those parents reported feeling "stressed and worried" compared
to only 32% of parents of typically developing children. (Whew, that's a
mouthful; I think I'll stick to "normal").
They concluded that the main source of stress was the fact that
They concluded that the main source of stress was the fact that
"Children with disabilities have three to four times more emotional and behavioral problems than typically developing children."
Once again, parents
of the profoundly disabled were overlooked. Don't we just wish our
children had a few "behavioral problems"?
The emotion I'd presume is most rampant in the land of profound disability is not stress: it's depression.
The prognosis for our children is usually bleaker than for the rest of the disabled population. The knowledge that they will probably never improve and will remain eternally young and dependent, is demoralizing. How did those researchers miss this?
The emotion I'd presume is most rampant in the land of profound disability is not stress: it's depression.
The prognosis for our children is usually bleaker than for the rest of the disabled population. The knowledge that they will probably never improve and will remain eternally young and dependent, is demoralizing. How did those researchers miss this?
For some more reading about the impact that a child with
disabilities has on the physical and mental health of parents and siblings, see "Family
Consequences of Children's Disabilities", "Impact on the Family: Time, Employment,
Finances, and Physical and Mental Health", and "Family
Adjustment to Childhood Developmental Disability: A Measure of Parent Appraisal
of Family Impacts from the Oxford
Journal of Pediatric Psychology.
P.S. I'm riding a serious wave of demoralization these days. C. is nearly weaned off the Neurontin totally (2 weeks to go). And she has been walking with her new brace and shoe lift for about 3 weeks. But still no improvement of any sort!
P.S. I'm riding a serious wave of demoralization these days. C. is nearly weaned off the Neurontin totally (2 weeks to go). And she has been walking with her new brace and shoe lift for about 3 weeks. But still no improvement of any sort!
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