tag:blogger.com,1999:blog-5505187301023634468.post7935982776354232491..comments2023-12-26T20:52:08.357+00:00Comments on The Sound of the Silent: "Help is on the way, dear!" (Perhaps)The Sound of the Silenthttp://www.blogger.com/profile/09669598042879486343noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5505187301023634468.post-7899386781293691272014-12-29T20:16:30.179+00:002014-12-29T20:16:30.179+00:00Elizabeth, SUDEP is not the only important item ab...Elizabeth, SUDEP is not the only important item about which I was ignorant for a long time. An awful lot flies by me; much of it highly relevant. <br /><br />For instance, SOMA and Rapid Prompting Method which you just mentioned. It sounds fascinating and I've begun reading up on it to fill in that gap. <br /><br />And what a beautiful reading experience you had with Sophie! I still read to C. during most of her meals. It's an activity I introduced after your blog post a few months back describing the pleasure Sophie gets from listening to good literature. (I remember you wrote that her aide said Sophie actually smiles while he reads to her.) The Sound of the Silenthttps://www.blogger.com/profile/09669598042879486343noreply@blogger.comtag:blogger.com,1999:blog-5505187301023634468.post-33211324157905321412014-12-26T15:59:52.360+00:002014-12-26T15:59:52.360+00:00I'm surprised that you hadn't heard of SUD...I'm surprised that you hadn't heard of SUDEP before now. The people who really brought it to life are in Great Britain -- and it only slowly was recognized here in America. There's always been debate in the epilepsy world on whether it's something to be discussed early in diagnosis. I, for one, am committed to advocating for as much information as possible, and certainly if epilepsy carries a death risk (however small), one should be aware of it. That being said, I'm sensitive to some people not wanting "too much information," particularly when there's no "treatment" or "cure." <br /><br />The antibiotic treatment for Angelman is so interesting. I will have to ask my friend whose daughter has it whether she's heard of it. I know that the gut/brain connection is immense and that there's been much researched and discovered for autism.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.com