tag:blogger.com,1999:blog-5505187301023634468.post3903692083425499208..comments2023-12-26T20:52:08.357+00:00Comments on The Sound of the Silent: Happy days are not here againThe Sound of the Silenthttp://www.blogger.com/profile/09669598042879486343noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5505187301023634468.post-86256239121192309952015-07-26T13:23:55.343+01:002015-07-26T13:23:55.343+01:00Thanks so much for your commiseration. and good wi...Thanks so much for your commiseration. and good wishes. I'm also hoping for a mysterious recovery. Because, as you noted, the neurologist's conclusion that the drug levels might be behind this doesn't make any sense. And no, they didn't check the benzo levels, only the valproic acid. So this dosage reduction is really just a stab in the dark. And as for the doctors skipping the metabolic workup - I suppose that's just another botch in a long string of them throughout C.'s life.The Sound of the Silenthttps://www.blogger.com/profile/09669598042879486343noreply@blogger.comtag:blogger.com,1999:blog-5505187301023634468.post-91629077966268133402015-07-25T05:41:44.722+01:002015-07-25T05:41:44.722+01:00Oh, no. I am so sorry to hear this. I can't im...Oh, no. I am so sorry to hear this. I can't imagine that a drug she's been on for years (the benzo) would suddenly cause this problem -- were her blood levels really high for it? And I've never heard of any negative side effect like that from cannabis, unless the cannabis actually pushes up the level of the benzo (which is certainly a known problem for some). As far as metabolic work-ups -- that's crazy that the doctors have never suggested it before. At least here in the United States, when you're diagnosed with epilepsy and looking for a cause, they run through all the tests for the known metabolic disorders, as well as genetic ones. I know, though, that it's a field that continues to grow. I sure hope your girl feels better soon -- I can imagine you're very anxious about all of this. I hope, though, that she gets better as mysteriously as she "got worse." Sending love to you and continued courage and strength.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.com