|From the website of a Delaware summer camp for special children|
She is "not appropriate" for it, we were told.
The one-week program is almost entirely subsidized and heavily staffed by volunteers. One of them, a mother of five healthy children, told my son, an architect, about the program. They work together at the municipality and she gave him the phone number of the camp after he had described to her his sister's condition.
I only called the camp after my son, concerned that I haven't haven't had a vacation since C.'s birth, urged me (actually "badger" is more like it) to do it.
In a way, I am relieved by the rejection. I was wary about leaving her in the care of strangers for so long.
But, gosh, a break would have been welcome.
Here is a question to ponder: If your child's disabilities had been discovered during pregnancy, would you have aborted?
With genetic testing being developed for an increasing number of conditions, this option is a real one for more parents than ever before. Many who have aborted after receiving positive test results, cite their government's and their society's attitudes towards disabilities as a major factor. So our efforts to change the status quo may actually save lives.
I know there are parents who hasten to reply to the abortion question with "I can't imagine my life without my disabled child!"
But I am not one of them. Had I known not only that C. would have disabilities but the actual extent of them, I believe I would have aborted. More about this quandary in this Guardian (UK) newspaper article.